edanna Posted July 19, 2014 Share Posted July 19, 2014 A friend of a friend's 22 month old boy, James, has recently been diagnosed with a horrific form of leukaemia called JMML. It can only be treated with a bone marrow transplant and so far, they have failed to find a match on the international registers. Here's his story: James is not alone. There are currently 1,800 people in the UK alone waiting for a match.While the search goes on, we're trying to help as much as we can by encouraging people to join the bone marrow registers. It's really easy - a simple cheek swab. And the process for actually donating stem cells is now much simpler and less painful than it used to be - most donors provide the cells through blood transfusions. Here's a great video on what's involved.We're working with Delete Blood Cancer so anyone between the ages of 17-55 who is in good health is eligible to join.You can come along and join the register Sunday the 27th of July10:00 - 4:00 FEB Offices, 32 Paul Street, EC2A 4LF (Shoreditch)Please check in at https://www.eventbrite.co.uk/e/join-the-bone-marrow-register-tickets-12340355335 to let us know you can make it. We need to make sure we have enough kits!It only take 10 minutes of your time to potentially save a life.If you can't make it London on the 27th then you can order a kit to be posted to your home: https://www.deletebloodcancer.org.uk/Thank you Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/ Share on other sites More sharing options...
Alan Medic Posted July 19, 2014 Share Posted July 19, 2014 It appears I'm out of the age range (too young). However, given the number of views this post has had and the lack of comments, I thought I'd at least say something.Everything you need to know is in edanna's first post. Get off your arse's and do something good. You will benefit too and who know's who else. You might save a life and it could be your own. Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766231 Share on other sites More sharing options...
Pickle Posted July 19, 2014 Share Posted July 19, 2014 Thanks for raising awareness, this is a very worthy cause. I've registered online as cannot make it on the 27th - took 5 minutes.I can't begin to imagine what your friends are going through, hopefully a donor is found soon. Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766241 Share on other sites More sharing options...
Robert Poste's Child Posted July 19, 2014 Share Posted July 19, 2014 Me too. Hope lots more people sign up. Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766269 Share on other sites More sharing options...
sunshine sky Posted July 19, 2014 Share Posted July 19, 2014 Thanks for reminding/ raising such an important issue. Been meaning to get on the register for ages but have never managed to get around to it! Can't make the event but have registered online. Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766270 Share on other sites More sharing options...
edanna Posted July 20, 2014 Author Share Posted July 20, 2014 Thanks all - it's really quick and easy to do. You just have to rub two cheek swabs around the inside of your cheek for a couple of minutes. I think the wide age range of people who can become donors is important to point out (even though it doesn't encompass AlanMedic) - I had assumed I was too old before I looked into it. Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766301 Share on other sites More sharing options...
PeckhamRose Posted July 20, 2014 Share Posted July 20, 2014 Also out of age and health range, but wish you well and hope the right someone comes forward x Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766434 Share on other sites More sharing options...
mima08 Posted July 21, 2014 Share Posted July 21, 2014 Cannot make teh 27th but ordered the swap kit - takes less than 5min to register.Hope a match can be found for your friends' little one (and others) mx Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-766642 Share on other sites More sharing options...
Robert Poste's Child Posted September 19, 2014 Share Posted September 19, 2014 I registered, got the swab kit and sent it back at the end of July but apparently it got lost somewhere along the line. Did anyone else have problems or is it just me? Link to comment https://www.eastdulwichforum.co.uk/topic/46994-what-are-you-doing-on-sun-27-july-give-someone-a-chance-of-life/#findComment-783034 Share on other sites More sharing options...
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