paddygirl Posted May 22, 2014 Share Posted May 22, 2014 Hi my baby girl is nearly 8 months old.she spent almost 7 months in kings after birth.just yesterday we received confirmation that she has Rubinstein tybai syndrome.any one on here have kids with special needs?are there any local support groups?i'm also looking for advice on childcare in case I return to work.thanks. Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/ Share on other sites More sharing options...
number 2 Posted May 22, 2014 Share Posted May 22, 2014 hi, i don't have a child with special needs myself, but i do work in special needs. you could try contacting sunshine house on peckham road. it's the place where all of the children's nhs services are held. i'm pretty sure they have parents' groups. you could also try your local children's centre (usually attached to schools) where they might be able to point you in the right direction. i would go with a childminder if i were you, a good childminder is worth their weight in gold if you find the right one.good luck! Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/#findComment-749242 Share on other sites More sharing options...
bluecanary Posted May 22, 2014 Share Posted May 22, 2014 contact a family are a great organisation, as well as providing information and support they can, as their name suggests, put you in touch with other families (with both parties permission). http://www.cafamily.org.ukThey also have drop in advice sessions, Sunshine House being one of the locationshttp://www.southwark.gov.uk/info/200279/parenting_support_and_courses/2481/contact_a_family_drop_in_-_under_fives/2 Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/#findComment-749280 Share on other sites More sharing options...
MsMaz Posted May 22, 2014 Share Posted May 22, 2014 Hello, There are a couple of drop-in sensory play sessions for under 5s, where you are likely to meet other parent carers. One is at Peckham Rye Playroom on Wednesdays 1.30-3.30pm. For more information, contact: Andrea, Ivydale Children's Centre, on: 020 7639 2702. Also a sensory session at Victory Primary School Children's Centre, Rodney Road, SE17 1PT. Fridays from 10am-12pm. For more information please call Sarah Quinn on 020 7703 5722. Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/#findComment-749289 Share on other sites More sharing options...
MsMaz Posted May 22, 2014 Share Posted May 22, 2014 meant to say the drop-in sensory play sessions are for under 5s with disabilities and/or special/additional needs and siblings are welcome, too. Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/#findComment-749290 Share on other sites More sharing options...
casey Posted May 25, 2014 Share Posted May 25, 2014 The drop-in sensory play sessions for under 5s are no longer held at Peckham Rye playrooms, it is now held at Ann Bernadt Childrens Centre in Peckham on Wednesdays 1.30-3.30pm. For more information, contacT 0207-525-0252 Link to comment https://www.eastdulwichforum.co.uk/topic/44642-special-needs-kids-anyone/#findComment-749950 Share on other sites More sharing options...
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