dino99 Posted May 3, 2014 Share Posted May 3, 2014 Anyone received more information about this from their GP?Is there an opt-out option like on the electoral register, where you can participate in public services, but not consent to your data being sold to private companies? Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/ Share on other sites More sharing options...
muffins78 Posted May 3, 2014 Share Posted May 3, 2014 What's this about? Are they able to sell private medical info about people now? Sorry I've not heard of this!! Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744004 Share on other sites More sharing options...
dino99 Posted May 3, 2014 Author Share Posted May 3, 2014 NHS records are being centralised in a large, regularly-updated database:http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx The programme is called care.data and there are good reasons for doing it - paper files in different physical locations is rather old fashioned and inefficient, but 'approved companies' will also be able to purchase different subsets of the data from the government. This is something that I am interested in finding out more myself in order to be better informed. Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744006 Share on other sites More sharing options...
Loz Posted May 3, 2014 Share Posted May 3, 2014 I thought this had been put back six months due to the many concerns. Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744050 Share on other sites More sharing options...
Zaardvark Posted May 3, 2014 Share Posted May 3, 2014 Yes - it has been postponed and there will be a better opt-out process. Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744056 Share on other sites More sharing options...
bemusED Posted May 3, 2014 Share Posted May 3, 2014 true, the parliamentary process has been delayed but reality is, its too late they've already sold our details, prior to the debate...13 years of health recordsfor ?2k to the insurance industry its like a script from a satirical comedy seriesalas, this is realhttp://www.wired.co.uk/news/archive/2014-02/25/insurance-companies-buy-medical-recordshttp://www.bbc.co.uk/news/health-26329748http://www.telegraph.co.uk/health/healthnews/10656893/Hospital-records-of-all-NHS-patients-sold-to-insurers.html Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744102 Share on other sites More sharing options...
JDR Posted May 3, 2014 Share Posted May 3, 2014 There are actually two different systems. One will be useful for research etc another just sold to people willing to pay....Will include quite a lot of info and anyone with knowledge of databases will be aware it won't be difficult for them to cross reference other data and actually work out who raw data belongs to. Be aware they are also about to do the same with data from HMRC Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744103 Share on other sites More sharing options...
Penguin68 Posted May 4, 2014 Share Posted May 4, 2014 If you do want to opt out, a suitable form (which allows you also to attach details for family dependents if minors) can be found here:-https://medconfidential.org/how-to-opt-out/There is also some more information on this site. I believe the problem is not the intent (which is to present aggregated data to allow research to be undertaken not just on hospital admissions - which is already up and running - but on GP issues as well) - but on the fact that despite assurances it would be possible, with only a litte data mining, to identify patients even where apparently anonymised information has been presented - and the government's (by which I mean any government's, I am not making a party political point here) inability to run things as expected and promised. There have been too many inadvertent and incompetant data breaches made by civil and other public servants - let alone those data breaches which were intentional and corrupt. The value of individual health information if you are an insurance company, wanting to write risk against known events, not probability, will become too attractive to avoid corrupt offers of access, particualrly if you fear your rivals have already got such access.Whether NHS officials will take any account of expressed patient desire for opt-out is of course another moot point. Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744186 Share on other sites More sharing options...
hpsaucey Posted May 4, 2014 Share Posted May 4, 2014 Penguin68 Wrote:-------------------------------------------------------> If you do want to opt out, a suitable form (which> allows you also to attach details for family> dependents if minors) can be found here:-> > https://medconfidential.org/how-to-opt-out/> > There is also some more information on this site.> I believe the problem is not the intent (which is> to present aggregated data to allow research to be> undertaken not just on hospital admissions - which> is already up and running - but on GP issues as> well) - but on the fact that despite assurances it> would be possible, with only a litte data mining,> to identify patients even where apparently> anonymised information has been presented - and> the government's (by which I mean any> government's, I am not making a party political> point here) inability to run things as expected> and promised. There have been too many inadvertent> and incompetant data breaches made by civil and> other public servants - let alone those data> breaches which were intentional and corrupt. The> value of individual health information if you are> an insurance company, wanting to write risk> against known events, not probability, will become> too attractive to avoid corrupt offers of access,> particualrly if you fear your rivals have already> got such access.> > Whether NHS officials will take any account of> expressed patient desire for opt-out is of course> another moot point.Thanks for posting Penguin68!Been looking for the form!HP Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744192 Share on other sites More sharing options...
PeckhamRose Posted May 4, 2014 Share Posted May 4, 2014 Note this is not the same as the Spinal Core records. Also, note, that last week the Forest Hill Surgery had a Patients Forum meeting where I believe this was discussed as someone from the Care Data came to talk about it. I highly recommend you all try and join the Patients Forums of your surgeries because even if you can not get to meetings (and ours has meetings at different times of days to try and get everyone in) you can have access to the minutes to learn what is going on. FWIW I opted out of everything! Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744215 Share on other sites More sharing options...
PeckhamRose Posted May 4, 2014 Share Posted May 4, 2014 (And I HATE the dot in the middle of the two words. Life changed for this Grammar Pedant when EastEnders began!) Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744216 Share on other sites More sharing options...
Bes Posted May 5, 2014 Share Posted May 5, 2014 Thanks for posting this. I have confusion now about this, because I thought first that this was about the summary care records. I will have to opti out of it all until I am provided information on it officially. I have never had any contact about this that I am aware of by my GP, or any other forms of information from government. Link to comment https://www.eastdulwichforum.co.uk/topic/43868-nhs-caredata/#findComment-744398 Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now