Your NHS data will be shared with 3rd parties

[FredCasa]

UNLESS you opt out. If you don?t want your data to be shared outside the NHS, you have to fill in this form and take it to your GP before 23rd June.

See FT today: ?England?s NHS is preparing to scrape the medical histories of 55m patients, including sensitive information on mental and sexual health, criminal records and abuse, into a database it will share with third parties.?

[first mate]

Thanks Fred.

I also noted that in using the 119 service to book or change a vaccination you seem to give consent to the NHS subcontracted (private)company to access your health records. Does anyone know more about this?

[Siduhe]

You can also easily opt in or out online if you know your NHS number:

https://your-data-matters.service.nhs.uk/

[Nanny]

Thanks for highlighting. Surely GDPR should protect against sharing personal data outside of the NHS? I wonder how COVID vaccination data will be shared via the NHS app.

[MoreCoffee]

Note there are *two* opt outs, one is the national level and one is the GP level.

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research#opting-out

National Data Opt out - https://your-data-matters.service.nhs.uk/.

GP Level - See https://digital.nhs.uk/about-nhs-digital/our-work/keeping-patient-data-safe/how-we-look-after-your-health-and-care-information/your-information-choices/opting-out-of-sharing-your-confidential-patient-information#type-1-opt-out-medical-records-held-at-your-gp-practice. You have to provide a form directly to your GP, this cannot currently be done online (I assume because the practice has to decide to send the data or not).

A few links on the NHS site seem to have changed this morning, so these may or may not continue to work. Perhaps there are moves afoot to publicise this better or even move the opt out to online. Surely the last thing GP practices need is millions of paper forms to process.

[Dulwich Born And Bred]

Thank you so much for alerting us to this. Forms printed off!

FredCasa Wrote:

-------------------------------------------------------

> UNLESS you opt out. If you don?t want your data to

> be shared outside the NHS, you have to fill in

> this form and take it to your GP before 23rd June.

>

>

> See FT today: ?England?s NHS is preparing to

> scrape the medical histories of 55m patients,

> including sensitive information on mental and

> sexual health, criminal records and abuse, into a

> database it will share with third parties.?

[????]

I?ve done no research into this but by ?your data? I think they mean using annomynized stats on health against various variables and data mining it to increase insights into health, demographics datamining for insight to improve health provision and service, Rather than your actual personal information being passed on.

It?s actually the sort of thing the NHS should be doing using it unique and massive data to look for patterns, say finding correlation between disease and conditions that we didn?t know about. A good thing.

[????]

But the ignorant and the sacred cowers will make a huge fuss over nothing again no doubt

[smooch]

thank you - very straightforward

[first mate]

Reading the privacy notice a number of thing raises question marks, notably that an emergency (pandemic)supersedes elements of that notice...quite what that means not sure but would like to be clearer.

It seems that unless you opt out you are giving over rather more than just anonymised data, your name, address, DOB.

Data is held in the cloud in secure servers in the EEC. Again, not sure of implications of that.

If you use the 119 service to book or change jabs a phone advisory seems to suggest you give permission to whoever is running that service (NHS subcontractor) to "access your health records".

No doubt all intentions here are as pure as the driven snow with only the interests of health and social research and public interest at the heart.

[alex_b]

On the 119 point, this seems fairly necessary for the subcontractor to do their job of booking the vaccine and making sure the record is updated. I don?t understand the concern here.

[first mate]

alex-b,

I agree that they need to check your identity but feel that could be qualified in the message, it isn't. I am probably way too cynical.

[first mate]

https://www.theguardian.com/commentisfree/2021/may/30/the-guardian-view-on-medical-records-nhs-data-grab-needs-explaining

Think this deserves much greater scrutiny. NHS patient records are a data goldmine...It is stated patient records would not be used solely for commercial purposes. That says it all.

[IlonaM]

Another helpful article: https://www.theguardian.com/commentisfree/2021/jun/03/gp-nhs-digital-data-patients-records-england

[ianr]

First Mate wrote on May 26, 05:48PM

> It seems that unless you opt out

> you are giving over rather more

> than just anonymised data, your name,

> address, DOB.

What's your source for your information that name, address and DOB may be passed on?

Does your "rather more than" refer to "just anonymised data, your name, address, DOB"? If so, what is the "more"?

[first mate]

ianr, suggest you read articles, as linked to in other posts, above. They explain implications/concerns better than I.

ianr Wrote:

-------------------------------------------------------

> First Mate wrote on May 26, 05:48PM

>

> > It seems that unless you opt out

> > you are giving over rather more

> > than just anonymised data, your name,

> > address, DOB.

>

> What's your source for your information that name,

> address and DOB may be passed on?

>

> Does your "rather more than" refer to "just

> anonymised data, your name, address, DOB"? If so,

> what is the "more"?

[first mate]

Essential opt out info here

https://medconfidential.org/how-to-opt-out/